Days Without Incident: 0

Have you ever been late for a flight only to make it just as the door at the gate was being closed? Ever been stuck in traffic on your way to an appointment only to make it on time? That is the same feeling you get when your child is seizure free for over a month and a half. There are some tense moments, and it's always at the back of your mind causing the slightest bit of stress but then you are relieved when you hit that milestone. However, as any parent of an epileptic child can tell you, that safety can be pulled away from you quickly. While those moments of seizure activity are terrifying they leave us with a wide open calendar to set new goals. Noah was seizure free for over a month and a half, his longest stretch in over 2 years. So now we raise that bar, we set our sights on 2 months.

A year ago I would have laughed at that, but a year ago today, Noah wasn't even walking. He almost thrives on doubt, when Doctors declare he will never do "X" he does it, it may not be perfect, it may not look like the other kids, but it's his perfect. Epilepsy is a thief of time and humanity. The seizure Noah had this morning at 7:47am will rob him of more than 5 hours, his brain needing that time to re-adjust and find its electrical rhythm once more. As I write this I just got a Text from Amy, S-3Min meaning seizure 3 minutes in length, his longest one yet and only 2 minutes from the Red Zone when a call to 911 is placed. 2 months, come on buddy, you can make it seizure free for 2 months. We fall down so we can get back up, and each time Noah gets up tougher. 2 months! The bar is raised.

What are your goals? Do you have plans that you are sitting on? Are you using your time to better yourself? Moments like these remind me that I can never rest on achieving my goals, time is precious, your life is precious, what are you doing to be the best person or parent you can be? Are you ready to raise that bar? Are you ready to fight? Read? Set? GO!

Keep Noah in your thoughts today and buckle those seat belts, it could get bumpy!

Best,
G